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WATCH FTD Brothers come to Limerick Saturday, May 16 as part of 33 marathons in 33 days
FTD Brothers, Jordan and Cian Adams, come to Limerick Saturday, May 16 as part of 33 marathons in 33 days. Photo: PA
The FTD Brothers come to Limerick on Saturday, May 16, as part of the 33 marathons in 33 days to raise dementia awareness
By I Love Limerick Editor, Cian Reinhardt
Jordan and Cian Adams, known as The FTD Brothers, will run their 20th marathon in as many days on Saturday, May 16, 10 am from Arthur’s Quay Park in Limerick City, with a full planned route available on their Strava, as part of a fundraising challenge for Alzheimer Society of Ireland in memory of their mother and family members who they have lost to a form of Frontotemporal Dementia (FTD).
The brothers are undertaking the incredible challenge of running 33 marathons in 33 days, in the 32 counties of Ireland, with the extra marathon having kicked off the challenge when Jordan took on the London Marathon carrying a fridge on his back.
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Speaking on RTÉ Late Late Show, Jordan told Patrick Kielty, “I ran the London Marathon with a 25 kilogram fridge on my back.” The following day, the brothers began their journey through Ireland, with Jordan adding, “after running the London Marathon with the fridge on my back trying to make dementia visible, we’re now on a mission to run a marathon in every single county here in Ireland to honour the memory uh of my mom and the 12 Irish relatives that we’ve lost to a familial form of FTD.”
The brothers explained that back in 2010, at the age of 47, their mother, Geraldine, was diagnosed with a rare form of FTD. Jordan said, “Overnight alongside my brother, my older sister and my dad. We became her primary carers, watched her be stripped of everything that made her the amazing mom, wife, friend that so many knew her to be. Sadly she died at the age of 52 back in 2016, 10 years ago, last month.”
The brothers are fundraising for the Alzheimer Society of Ireland and for their own non-profit organisation, FTD Brothers Foundation, as part of their challenge, with 50 per cent of all donations going directly to Alzheimer Society of Ireland.
Medical research in Ireland later identified a hereditary mutation in the MAPT gene within the family, linked to Frontotemporal Dementia. Sepaking on the Late Late Show, both Jordan and Cian said they have since learned they carry the gene and are expected to develop the condition later in life.
On their GoFundMe page, which has received more than 1.3 million pounds in donations, the brothers say their diagnosis has given them a “license to live”.
They said, “When we received our diagnoses, it could have been the end of hope. Instead, it became the beginning of purpose. We have chosen to use the time we have — while our minds are still here — to act. To educate. To raise awareness. And to try to change what the future looks like for families affected by dementia. That is why we run. That is why we speak publicly.”
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WATCH FTD Brothers come to Limerick Saturday, May 16 as part of 33 marathons in 33 days
