At the age of 28, Limerick lady, Lette Moloney who is a photographer and graphic designer was diagnosed with Dysautonomia (or autonomic dysfunction), which is any disease or malfunction of the autonomic nervous system. Specifically Lette suffers from Postural Orthostatic Tachycardia Syndrome (POTS), Neurocardiogenic syncope with Respiratory Arrest (serious fainting without breathing) and in the past 3 years she was also diagnosed with Ehlers Danlos Syndrome (EDS), and a Seizure Disorder.
In 2013 Lette’s hips failed. She now uses a wheelchair. In May 2014 after a syncope and respiratory arrest, where she needed rescue-breathing for 17 minutes, she started to experience recurring seizures. The health system’s slow pace means Lette must wait months to begin investigations to rule out a brain adenoma. We decided to ask for your help because, over the past 3 years Lette’s health has deteriorated. These conditions are very rare, and treatment is complicated by a lack of understanding by healthcare professionals.
Specialist treatment is simply unavailable in Ireland. Your assistance will allow Lette to travel for initial, and follow-up sessions with three specialist consultants in London. It will provide for diagnostic and clinical examinations, treatments, scans, and associated expenses to discover a course of treatment for her condition, allow her to promptly rule out any high-risk complications, and most importantly to hopefully improve her quality of life.
Lette tells me, “Before I became ill, I would see people with chronic illnesses and disabilities, getting out there (sometimes on their own), I never understood the amazing effort that these people make when they choose to live. Especially when the social and health supports fall so short of the standards that we, as a society, expect of ourselves. We are capable of remarkable feats of political clarity, and the Irish people have always had the interests of those with disabilities close to their hearts. Perhaps it’s time, once again, to channel some of that focus and clarity back towards those who need it most. I deeply appreciate any contribution that you can make, or awareness you can spread, to help me get access to the treatment that I need.”
To donate go to www.gofundme.com/letteeds.