Charity
Malin2Mizen Cycle4CF makes its way through Limerick this Saturday, September 14
Limerick people are being called on to support 44 volunteers as they cycle from Malin head to Mizen head raising funds for Cystic Fibrosis Ireland (CFI) in the 2024 Malin2Mizen Cycle4CF
Malin2Mizen Cycle4CF on track to exceed €1m in funds raised to help people with Cystic Fibrosis in Ireland
Limerick people are being called on to support 44 volunteers as they cycle from Malin head to Mizen head raising funds for Cystic Fibrosis Ireland (CFI), the national charity for cystic fibrosis (CF) in Ireland. The target for 2024 is €100,000 and if achieved, will mean a staggering €1,000,000 has been raised since this cycle started in 2016.
The first cycle was set up in memory of Triona Priestley, who passed away ten years ago from CF when she was just 15 years old. Triona’s mother, Bernie Priestley has been a driving force behind this event over the past 10 years and is now Chairperson of CFI.
Bernie says “In the 10 years since Triona passed, the CF landscape in Ireland has changed dramatically and so much progress has been made. Triona was always a voice for people with CF in Ireland and I think she would be so proud and amazed of where we are today. To carry on her legacy in this way, surrounded by others including her friends, all working for the same goal, is an emotional, and powerful thing.”
According to the latest data from the Cystic Fibrosis Registry of Ireland (CFRI) there are 1,342 people with CF in Ireland, 83% of whom are eligible for the new modulator therapy which treats the underlying cause of CF.
Following a series of nationwide member townhall meetings and analysis of data gathered through member surveys, CFI identified significant changes to the lives and needs of its members in the wake of these advanced therapies, ranging from accessing further education and fertility choices to obstacles in obtaining accommodation, life insurance or pensions.
Sarah Tecklenborg, Interim CEO CFI says, “We are so grateful that our members and the public have dedicated almost ten years to this event – the support it provides is transformative. CF has always been an exceptionally challenging condition and since the roll out of the highly effective modulator therapies, that hasn’t changed.
“But what has changed is the nature of these challenges which reflects how living with CF is changing at pace. As an organisation we must ensure that our services evolve and adapt to continue to meet the needs of people living with CF in Ireland. This is only made possible by the incredible support of events like our Malin to Mizen cycle.”
The cycle starts in Malin Head on Thursday September 12 and will take four days to cover 640 kilometres in their cycle to Mizen Head, which they aim to reach on Sunday, 15th September. Members of the public are invited to come out and show their support as the cyclists pass through the towns and villages along the way.
Amy Keller from Limerick is Aunty to 3-year-old Hazel who has CF and her brother in-law, Dylan Scally, Hazel’s Dad, is cycling the route for the second time this year. Amy says, “As an aunty of the best little girl I know, who has CF – I have seen the supports that CFI provide my family with everything from exercise grants to new parent support groups.
“These are only possible by the funds and awareness raised by the Malin 2 Mizen cycle and other events like it. That’s why it is so important, not only to CFI, but to me, my family and the rest of the CF Community in Limerick, and I would urge everyone to get behind CFI and help keep providing essential supports to its members.”
Come out and show your support for the heroes taking part in the Malin2Mizen Cycle4CF 2024 as per the schedule below. For anyone looking to take place in our Malin2Mizen Cycle4CF 2025 which takes place from Thurs 11.09.25 to Sunday 14.09.25, you can register your interest now at www.cfireland.ie to secure a place.
If you cannot make it on the day to show your support, you can make a donation or find out more about the services and supports CFI provide.