Zondra Meaney is a 28 year old Limerick lady who was diagnosed with Ehlers Danlos Syndrome, POTS and Myasthenia Gravis. Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provides strength and elasticity to the underlying structures in your body. People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn’t strong enough to hold them. Unfortunately the Irish Health System and hospitals are not equipped to deal with the severity of the diagnosis. There is no specialist for Ehlers Danlos Syndrome in Ireland. No treatment can be given in this country for the condition and no plan for the future management of this progressive illness has been given. As Zondras health deteriorates all the Irish health system can do is manage her pain with morphine. She spent month of this past December in hospital, away from her family and her six year old son. For Zondra to have a chance at a normal life with her son, she will need specialist care and treatment in London where there is a specialist centre dedicated to the treatment and management of Ehlers Danlos Syndrome. As the Irish Government will not fund this treatment abroad her family have set up a donation page to fund the inevitable medical expenses going forward. They would appreciate any donations and support they receive in helping Zondra access the treatment and medical care she so desperately needs. Zondra tells me, “I can’t begin to describe how much the support of the Limerick people means to me and how it has helped me get me through a tough period in my life. I want to say thank you to all those people who are making a difference in the lives of my son and myself. I am indebted always.” To donate please visit www.gofundme.com/60ban8.