Limerick lady Siobhan Hogan pictured above was diagnosed with MND in 2022 and her sister Nevis is fundraising in her honour.
For the first time Voice4MND will be taking place through the month of June, and Limerick woman, Nevis Hogan who will support IMNDA, is calling on people to ‘help raise funds for the support services they provide’
Motor Neurone Disease (MND) Global Awareness Day takes place this June 21 and for the first time, Voice4MND will take place in the month of June.
MND Global Awareness Day acknowledges the impact that MND has on people around the world, with this date being selected for the special reason that it marks a solstice seen by many as a turning point in the year, the start of a new season of hope.
“On November 12th 2022 our sister Siobhan was diagnosed with Motor Neurone Disease,” said Nevis Hogan who is taking part in the Voice4MND fundraiser, adding, “This news was devastating for Siobhan and our family.”
Nevis wanted to remind everyone that “June 21st is Motor Neurone Disease global awareness day” and has called on people to “show support for the services IMNDA (Irish Motor Neurone Disease) provide people & their families”.
MND can impact significantly on a person’s speech. More than 80% of people living with MND will experience some form of speech difficulty during their illness – some will lose their voice completely.
#Voice4MND is our annual sponsored silence campaign where we raise awareness and aim to give people with MND a voice by standing with them. All we ask is that you stay silent for a time period of your choice so you can briefly experience how it feels to not be able to speak.
“IMNDA are asking anyone who wishes to partake in a sponsored silence, to help raise funds for the support services they provide, it could be an hour’s silence or a full day of silence, highlighting one of the symptoms of Motor Neurone Disease the loss of a person’s voice,” she said.
The Voice4MND webpage reads, “Imagine one hour, imagine one day, imagine one week without your voice. This is day to day life for many people with Motor Neurone Disease. All you need to do is pick a day and duration for your silence, register and share your online page! Take on our challenge this June because sometimes silence speaks volumes.”